Made up of representatives from service users, carers and occupational therapists, this group agrees the plan of action, scope and takes responsibility for the PSP.
A survey is created asking service users and their carers to respond by posing questions they have for research.
With oversight from the steering group, the JLA Information Specialist will sort all the responses and creates summary questions. This becomes a long list of summary questions.
The long list of summary questions is checked against existing research evidence to ensure they are true uncertainties. Any questions that have already been answered by research are removed.
Service users and carers are asked to vote on the most important questions in an interim priority setting survey. This reduces the remaining long list of summary questions to a shorter list to be discussed at a workshop.
The highest ranked questions from the interim priority setting survey are discussed in a number of workshops of service users, carers and vascular specialists who together agree the ‘Top 10’ list of priorities across a range of vascular disease areas. The workshops will be facilitated by an adviser from the James Lind Alliance.
The ‘Top 10’ is announced and published on the Vascular Society website and the James Lind Alliance website and promoted to researchers and funders. The PSP works with researchers and funders to further develop the priorities into specific research questions.