Dr Joseph Clark

BA, MA, PhD

Research Fellow in Palliative Care

Role at Hull York Medical School

Joseph is a postdoctoral research Fellow at HYMS within the Wolfson Palliative Care Research Centre. Joseph was a co-applicant on the £1.4 million grant award to conduct a definitive trial of the Needs Assessment Tool – Cancer in primary care. He is now conducting the process evaluation for the project across 54 general practices across Yorkshire and the North East. He was the study manager of the feasibility study.

Joseph has a specific interest in global aspects of palliative care and is leading the development of a global palliative care research strategy at Wolfson. He is a founding member of the Hull Global Health Research Network and supervises several student projects related to this theme and has recently begun collaborating with partners in India and Nepal, working on projects to identify and manage chronic breathlessness. His broader work focuses upon palliative care in global context, exploring the role of global health policies in the ongoing international development of palliative care.

Visit the Global Palliative Care page

Biography

Joseph Clark is a Postdoctoral Research Fellow in Palliative Care at the Hull York Medical School. He has several peer-reviewed publications and a track record of conference presentations. He has worked on several multicentre clinical trials and is currently the Trial Manager for Cancer Needs Assessment in Primary Care (CANASSESS:PC) a project which aims to test a new palliative care cancer needs assessment tool for use in primary care in the UK.

Joseph completed his PhD "A global social policy analysis of international palliative care development" in 2016 and continues to promote international palliative care development. He has previously worked as a volunteer at the Neighbourhood Network in Palliative Care in Kerala, India. He is currently working on projects highlighting how international drug regulations negatively impact upon opioid availability worldwide.

He is further seeking to expand his international research by working with partners in South Asia on projects examining opportunities for increased palliative care provision in Asia.

Specific expertise: global palliative care policy, policy transfer, systematic reviewing, mixed-methods research, clinical trials, population ageing and public health.

Research

A cluster Randomised Controlled Trial to determine the effectiveness and cost-effectiveness of the NAT-C in reducing unmet needs of patients in primary care

A cluster Randomised Controlled Trial exploring the feasibility of testing the routine use of the Needs Assessment Cancer (NAT-C) in primary care.

Clark J, Fabowale B, Currow D and Johnson M. Are opioids 'medicines' or 'drugs'? A discourse analysis of the annual reports of the International Narcotics Control Board.

Clark J, Ghoshal A and Johnson M. Feasibility testing of self-management techniques appropriate for chronic breathlessness management in India.

Clark J, Murtagh F and Johnson M. Global Challenges Research Fund, Responsive mode funding: £4000 An exploratory project with partners in Nepal, considering the feasibility and appropriateness of a programme of chronic breathlessness research in Nepal.

Teaching

Joseph developed and is currently delivering a short module ‘Global Health and Palliative Care’ to second year medical students within Hull York Medical School. He also contributes to marking across several modules within the department.

Publications

Clark JD, Johnson M, Fabowale B, Farrelly M, Currow D. Does the International Narcotics Control Board (INCB) sufficiently prioritise enablement of access to therapeutic opioids? A systematic critical analysis of six INCB annual reports, 1968-2018. Journal of Global Health Reports. 2020. doi:10.29392/001c.12925.

Button HE, Johnson M, Nwulu U and Clark J. Identification and Assessment of Breathlessness in Clinical Practice: A Systematic Review and Narrative Synthesis. J Pain and Symptom Manage, 2019. DOI: 10.1016/j.jpainsymman.2019.10.014.

Daniel S, Clark JD, Gnanapragasam S, Venkateswaran C and Johnson M. Psychological Concerns of Indian Women With Breast Cancer in Different National Contexts: A Systematic Review and Mixed-Methods Synthesis. BMJ Support Palliat, 2020. doi: 10.1136/bmjspcare-2019-002076.

Clark J, Barnes A, Campbell M and Gardiner C. A Life or “Good Death” Situation? A Worldwide Ecological Study of the National Contexts of Countries That Have and Have Not Implemented Palliative Care. J Pain Symptom Manage, 2019:57:793-801.

Clark J, Barnes A and Gardiner C. Re-framing Global Palliative Care for the Sustainable Development Goals Era: a qualitative study of the views of international palliative care experts. J Pain Symptom Manage, 2018;56(3):363-370.

​Currow D and Clark J. Why Smart Emerging Economies Will Invest in Excellent Palliative Care, if Palliative Care Services Do Their Part. J of Palliat Med. 2018;21(3):276-77.

Clark J, Barnes A and Gardiner C. Systematic Mapping Review of International Palliative Care Research. 2016. BMJ Supportive and Palliative Care. doi:10.1136/bmjspcare-2015-001008

Brereton L, Clark J, Ingleton C, Gardiner C, Preston L, Ryan T and Goyder E. What do we know about different models of providing specialist palliative care? Findings from a systematic review of reviews? 2017. Palliat Med, 217;31(9):781-797.

Brereton  L, Wahlster P, Lysdahl KB, Mozygemba K, Burns J, Chilcott JB, Ward S, Bronneke JB, Tummers M, van Hoorn R, Van der Wilt GJ, Pfadenhauer L, Gerhardus A, Rowher A, Rehfuess E, Oortwijn W, Refolo P, Sacchini D, Leppert W, Blazeviciene A, Preston L, Clark J, and Goyder E. On behalf of the INTEGRATE team. (2016). Integrated assessment of home based palliative care with and without reinforced caregiver support: ‘A demonstration of INTEGRATE-HTA methodological guidances’ – Executive Summary [Online]. Available from: http://www.integrate-hta.eu/downloads

Clark J. Systematic Mapping Review of International Palliative Care Research. EAPC 2015 14th World Congress of the European Association for Palliative Care. 2015. European Journal of Palliative Care. United Kingdom: Haywood Publishing Group

Clark D, Clark J, and Greenwood A. The place of supportive, palliative and end-of-life care research in the United Kingdom Research Assessment Exercise, 2001 and 2008. Palliat Med. 2010;24: 533-543

Wright M, Clark J, Greenwood A. et al (2004) Palliative care policy development in Central and Eastern Europe and Central Asia: An Open Society Institute initiative. Progress in Palliative Care 12(2): 71-75

Collaborations

Johnson M, Clark J, Daniel S, Salins N, Pearson M, Soyiri I, Hamzah E, Munday D. Bid in preparation for a project entitled: “Opioids for cancer pain: bridging the gap between policy and practice” with collaborators in India, Nepal and Malaysia.

Clark J, Ghoshal A and Johnson M. Feasibility testing of self-management techniques appropriate for chronic breathlessness management in India.

Clark J, Murtagh F and Johnson M. Global Challenges Research Fund, Responsive mode funding: £4000 An exploratory project with partners in Nepal, considering the feasibility and appropriateness of a programme of chronic breathlessness research in Nepal.

Postgraduate research supervision

Helene Elliott Button, PhD candidate.

Working title: "Identification and Management of Chronic Breathlessness in Primary Care."

Joseph welcomes enquiries from prospective students interested in palliative care, in national and international context.

Presentations

Oral presentations

A cluster randomised feasibility trial (cRCT) to test the routine use of the Needs Assessment Tool: Cancer (NAT:-C) in primary care to reduce unmet patient and carer needs and determine the feasibility of a definitive trial. European Association of Palliative Care Conference, Berlin, May 2019. Clark J, Blenkinsopp J, Currow D et al.

· Oral presentation at the largest international palliative care conference.

· Abstract selected from 1480 submissions, all abstracts were blinded and independently reviewed and scored by three different experts in the field.

· Definitive trial now funded for £1.4m by Yorkshire Cancer Research

· Also presented at BJGP conference, London, March 2019

What are the opportunities for cancer care and related research in primary care? A qualitative study of the views of patients, carers and practice staff.

· The Association for Palliative Medicine of Great Britain and Ireland Conference, Harrogate, March 2019.

· Manuscript in draft for submission once main trial paper in print.

A Life or "Good Death" Situation? A Worldwide Ecological Study of the National Contexts of Countries That Have and Have Not Implemented Palliative Care.

· The Association for Palliative Medicine of Great Britain and Ireland Conference, Harrogate, March 2019.

Avoidable time-delays to research trials in primary care: a normalisation process theory evaluation and time-interval delay framework. Conference presentation. Oral presentation.

· Society for Academic Primary Care, London, 10-12 July, 2018.

The CANASSESS study: challenges to recruitment and data-driven solutions.

· SEDA conference, University of Hull, 2018.

Poster presentations

A Life or "Good Death" Situation? A Worldwide Ecological Study of the National Contexts of Countries That Have and Have Not Implemented Palliative Care. Clark J, Barnes A and Gardiner C.

· European Association of Palliative Care Conference, Berlin, May 2019

· Poster prize winner

What are the opportunities for cancer care and related research in primary care? A qualitative study of the views of patients, carers and practice staff. Clark J, Amoakwa E, Johnson M et al.

· European Association of Palliative Care Conference, Berlin, May 2019.

· BJGP conference, London, March 2019.

A cluster randomised feasibility trial (cRCT) to test the routine use of the Needs Assessment Tool: Cancer (NAT:-C) in primary care to reduce unmet patient and carer needs and determine the feasibility of a definitive trial. Clark J, Amoakwa E, Johnson M et al.

· The Association for Palliative Medicine of Great Britain and Ireland Conference, Harrogate, March 2019.

What are the opportunities for cancer care and related research in primary care? A qualitative study of the views of patients, carers and practice staff. Clark J, Amoakwa E, Johnson M et al.

· BJGP conference, London, March 2019.

Systematic Mapping Review of International Palliative Care Research. 2016. BMJ Supportive and Palliative Care, Clark J, Gardiner C and Barnes A.

· European Association of Palliative Care Conference, Copenhagen, 2015.

The Sheffield experience of Patient & Public Involvement (PPI) in the INTEGRATE-HTA Project. Gath J, and Clark J et al.

· 9th Biennial INVOLVE Conference, Birmingham, United Kingdom, 26th November, 2014.