I am a research fellow leading an NIHR funded feasibility trial of a breathlessness crisis management intervention for paramedics when called out to patients with chronic breathlessness (BREATHE). This work derives from my PhD research on the experience of chronic breathlessness and presentation to the emergency department.
I currently am a member of NHS England's Long Term Plan Breathlessness subgroup. Additionally, I am on the conference organising committee of the Dyspnea society.
I have worked with local people and artists Anna Bean and Rob Mackay to develop a multimedia exhibition to show what it is like living with breathlessness, entitled “Bringing Breathlessness into View”. This project received funding from Hull City of Culture 2017, the Wellcome Trust and the University of Hull. This exhibition will be taken to a variety of community and health centres over the next year to raise awareness of this difficult symptom and to let people know what can be done to live well with it. Watch my video about the aims of the exhibition here.
Additionally, I am interested in cancer-associated thrombosis and have published a qualitative sub-study of the select-d trial on the patient and carer experience of oral and injected anticoagulants and also a systematic review of the experiences of cancer patients living with venous thromboembolism.
I have a degree in Experimental Psychology and a Postgraduate Certificate in Education, both from the University of Oxford. Prior to training as a researcher, I gained 15 years of secondary school teaching experience. I was awarded a PhD in Medical Sciences from the University of Hull on chronic breathlessness and presentation to the emergency department in 2017. I am very interested in public engagement and recently took part in the British Science Festival 2018.
My PhD investigated the role of chronic refractory breathlessness in emergency department presentations. This research involved a mixed methods approach including a patient survey and case note review at the Hull Royal Infirmary, followed by in-depth interviews exploring how breathlessness had triggered a presentation at the emergency department. These research findings are set in the context of a systematic review of the existing qualitative literature on the experience of breathlessness.
This research has led to the development of a NIHR funded feasibility trial (BREATHE) in collaboration with the Yorkshire Ambulance Service and the Universities of York and Sheffield.
In addition to this research I am co-investigator on the ExacQual study.
Please see my University of Hull profile for an up-to-date list of my publications.
I am part of a group working on a Cochrane systematic review entitled: Cognitive-emotional interventions for breathlessness in adults with advanced diseases. I also collaborate with a group of researchers at the University of Technology, Sydney.