Chief Executive of Hospice UK, the national hospice and palliative care charity.
Tracey joined Hospice UK in January 2016 and before then was CEO of the Association of Police and Crime Commissioners.
Her previous roles include Chief Executive of the Personal Education Group (pfeg) where she led a successful campaign for financial education to be included in the National Curriculum.
She was also UK Director of the charity MEND, which tackles obesity and promotes healthy living, and spent 13 years in management consultancy with Price Waterhouse, Accenture and ITV.
Tracey is on the board of the Gold Standards Framework and on the Lancet Commission into the Value of Death. She is also Co-Chair of the Palliative Care Leadership Collaborative.
She holds an engineering degree, MBA, postgraduate qualifications in International and Social Policy and is a Chartered Director.
Elderly care and palliative care physician, Department of Research & Education, CIRO, Centre of Expertise for Chronic Organ Failure, Horn, and Research Co-ordinator, Centre of Expertise for Palliative care at the Maastricht University Medical Centre+, Maastricht, The Netherlands.
Daisy’s research interests include the palliative care and psychosocial needs of people with advanced non-malignant disease.
Dr Kathleen Lindell
Associate Professor of Medicine and Nursing in the Pulmonary, Allergy, & Critical Care Medicine Division, University of Pittsburgh Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease at UPMC in Pittsburgh
Dr Kathleen Lindell has been a nurse for 42 years, with a focus in advanced lung disease for the past 30 years. She obtained her Master's Degree in Pulmonary Nursing from the University of Pittsburgh in Pittsburgh, PA and worked at the Hospital of the University of Pennsylvania in Philadelphia, PA in the Medical ICU Step-down unit and the PENN Lung Center.
This is her 20th year at the University of Pittsburgh Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease at UPMC in Pittsburgh, PA where she is an Associate Professor of Medicine and Nursing in the Pulmonary, Allergy, & Critical Care Medicine Division. She directs the Pulmonary Fibrosis support group.
Dr Lindell’s program of research is directed toward improving the quality of life for patients with advanced lung disease, specifically Idiopathic Pulmonary Fibrosis (IPF) and their family caregivers. This research focus developed from experience working to improve support available to patients with IPF and their caregivers, assuring patients and caregivers are aware of the most recent education available to improve their knowledge, and engaging in advocacy efforts to increase awareness of this disease. Currently she is involved in research efforts to improve palliative care preparedness of patients with life-limiting illness and their family caregivers.
Effective November 15, 2020, she will assume the position of Mary Swain Endowed Chair for Palliative Care Health at the Medical University of South Carolina College of Nursing in Charleston, SC.
Dr Maddocks is a Senior Lecturer in Health Services Research and specialist physiotherapist at the Cicely Saunders Institute, King’s College London.
His research interests span palliative care, rehabilitation, muscle related disorders, and functional assessment. He chairs the London hub of the Council for Allied Health Professions research, and the Advanced disease and End of Life Care subgroup of the National Cancer Research Institute Supportive and Palliative Care Clinical Studies Group.
Professor of Social Work, Director of the NIHR Social Care Workforce Research Unit, King's College London.
In January 2019 she will move to be Director of the new NIHR Health and Social Care Workforce Research Unit. Jill’s areas of research interest span health and wellbeing of older people with frailty, dementia and who are part of hard to reach groups. She works with the Department of Health and Social Care on several subjects and closely with several social care employers to link research and practice. Other areas of research include child safeguarding, gambling and homelessness. She is a Trustee of the Centre for Policy on Ageing and of the Orders of St John Care Trust. In addition she is a NIHR Senior Investigator Emeritus and Fellow of the Academy of Social Sciences. Internationally she is the SR Nathan Professor of Social Work at the National University of Singapore and holds visiting chairs at Ulster University and the University of Melbourne.
Jane Phillips (Committee Chair)
Professor Palliative Nursing, Director IMPACCT– Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, Faculty of Health, University of Technology Sydney, Sydney, Australia.
Jane has led and evaluated a number of major cancer and palliative care reform initiatives at the local and national levels. Jane’s research aims to improve care outcomes for people in the last year of their life. She is currently evaluating non-pharmacological interventions to improve pain, breathlessness and delirium; looking at health services that can improve care for older people with cancer, and; undertaking translational research in the areas of pain management and symptom management.
Professor of Health Services Research, Institute of Population Health Sciences, Barts and The London School of Medicine and Dentistry
Trevor was Deputy Vice-Chancellor of the University of York (2007 – 2012) and Dean of the Hull York Medical School (2013 – 2016). His publications and research specialities include the effectiveness and cost-effectiveness of healthcare and public health interventions (including health care quality and the measurement and management of health care performance; policy development and evaluation; resource allocation in health care and the public sector; research methods including evidence synthesis and experimental evaluation of complex interventions. For more details please see Trevor's profile on the University of York website.
Lesley Turner has a background in Law having practiced for a number of years as a Defendant Clinical Negligence Litigator and Head of Facilities at the International Law Firm DAC Beachcroft LLP. In 2005 she was diagnosed with invasive breast cancer and underwent a radical mastectomy with axillary clearance.
Lesley has been a member of the National Cancer Research Institute’s Supportive and Palliative Care Clinical Studies Group, and sits as a lay member of the NCRI Breast Clinical Studies Sub Group working on symptom management issues. She is also an active member of the NCRI Consumer Forum, and Independent Cancer Patients’ Voice.
She is a Member of Breast Cancer Now’s Tissue Bank Advisory Council, and a Member of the Breast Cancer Now’s Catalyst Grant Committee which has funded 17 studies to date worth a total value of approximately £5.8 million.
She is also a Co-Applicant on a number of funded trials and a member of numerous Trial Steering Committees.
Professor in Health Care Research, Centre for Health and Social Care Research, Kingston and St. George’s University, London.
Annette is a social scientist evaluating the impact of research on policy and practice. She has expertise in service improvement research, patient involvement in research and in patient experience research. Annette is Deputy Chair of the UK Implementation Society. Until January 2019 she edited the leading journal in the field: Evidence & Policy and recently contributed to a special issue of the journal Research Evaluation on research impact assessment.
Past members of the International External Advisory Scientific Committee
Professor of Medicine, University of Pennsylvania, Pulmonary Medicine, Critical Care Medicine and Founding Director, Harron Lung Center, Perelman School of Medicine, Hospital of the University of Pennsylvania, Philadelphia. USA
John has practiced critical care as well as pulmonary medicine for more than 30 years. He is a pulmonary and critical care physician and the former long-term head of a leading Pulmonary Allergy and Critical Care Division. He was editor of the Annals of the American Thoracic Society between 2012 and 2017. His scholarly interests focus on alleviating the suffering of patients with advanced lung disease including those with chronic respiratory failure.