About the project
Funder: Marie Curie
Time frame: 2019-2021
Contact for more details: Jason Boland and Professor Miriam Johnson
The aim of this project is to develop an agreed core outcome measurement set for research and clinical practice.
We will use standard, internationally agreed techniques (COMET registered). We will: i)Review the published literature, ii) interview patients and carers to understand what is most important to them iii) use a Delphi survey with patients, family representatives, researchers and clinicians to agree together on what measures should be used.
As part of our study, we are conducting a survey to help us to identify which measures are the most important for clinical research, and which are most relevant to patients.